After reading so many stories of parents who adore their children with Hemangioma or other facial conditions, although the stories are unique with their own stories, one thing resonates the same all the time is that no matter how facial disorders affect our lives, the children are the apple of our parents’ eyes.
Many brave parents have faced different reactions from the world and continued to raise their children with love and care they deserve and tried to transfer the confidence through that love.
Whatever and however unique and special the expression of love is it is still challenging for us to be the apple of our own eyes.
I think it becomes a life-long homework for us with facial disorders to remind ourselves how special we are.
As the children grow, they will try different ways to work on this homework. Sometimes, it will be a way that you as parents will never agree. However, I hope that all the brave souls out there do not forget the positive impact of their children’s effort despite the differences. I have mentioned many times in my pieces that it is absolutely crucial that the children are allowed the time and opportunity of their own to embrace their disorders, as their past, present and future. Because even if one day, it’s not visible and no one reminds us at all of the birthmark or ordeals that came along with the birthmark, it is part of us whom deserve hugs and kisses!
Activity of the day: Look at ourselves in the mirror and imagine to look at where facial disorder affected/affecting us. The parents who do not have facial disorders can do the same and imagine to look at the part of the face where you know you constantly or time to time wonder if it’s ever going to be the same. Simply share how you feel about it with your love ones. Small or big, visible or not visible, it’s Simply Just Ours. <3
Cheers and Love as always,
Sarah MJ
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